STAGES OF CREATION OF THE KAZAKH LINGUAL VERSION OF A QUESTIONNAIRE OF THE EUROPEAN ORGANIZATION OF RESEARCH AND CANCER THERAPY – EORTC QLQ-C30
Abstract
The modern data concerning research of oncologic patients’ quality of life with the help of the international questionnaire of EORTC QLQ-C30 are submitted in this work. According to international standards language and cultural adaptation of EORTC QLQ-C30 questionnaire was made with taking into account ethno-linguistic features of population, tool validation and the Kazakh lingual version of a questionnaire EORTC QLQ-C30 equivalent to the original was created. The created version is characterized by high psychometric properties.
Keywords:
oncology, quality of life, EORTC QLQ-C30 questionnaireReferences
1. Jerkeman M., Kaasa S., Kvaloy S. et al. Health-related quality of life, as assessed by the EORTC QLQ - C30 (v 1.0), in patients with aggressive lymphomas treated with CHOP or MACOP-B in a multicentre random ized trial by the Nordic Lymphoma Group // Ann. Oncol. – 1998. – Vol. 9, Suppl. 4. – Abstr. 5190.
2. Aaronson N.K., Cull A., Kaasa S., Sprangers M. The European Organi-sation (or Research and Treatment of Cancer (EORTC) modular approach to quality of life assessment in oncology // Int. J. Ment. Health. – 1994. – Vol. 23. – P. 75-96.
3. Fayers P., Bottomley A. Quality of life research within the EORTC - the EORTC QLQ-C30 // Eur. J. Cancer. – 2002. – Vol. 38, N 3. – Р. 125-133.
4. Aaronson N.K., Ahmedzai S., Bergman B. et al. The European Organization for Research and Treatment of Cancer QLQ-C30: a quality-of-life instrument for use in international clinical trials in oncology // J. Natl. Cancer Inst. – 1993. – Vol. 85, N 3. – Р. 365-376.
5. Boehmer S., Luszczynska A. Two kinds of items in quality of life instruments: «indicator and causal variables» in the EORTC qlq-c30 // Qual. Life. Res. – 2006. – Vol. 15, N 2. – Р. 131-141.
6. King M.T. The interpretation of scores from the EORTC quality of life questionnaire QLQ-C30 // Qual. Life. Res. – 1996. – Vol. 5, N 12. – Р. 555-567.
7. Hjermstad M.J., Fayers P.M., Bjordal K. et al. Using reference data on quality of life - the importance of adjusting for age and gender, exemplified by the EORTC QLQ-C30 (+3) // Eur. J. Cancer. – 1998. – Vol. 34, N 8. – Р. 1381-1389.
8. Osoba D., Rodrigues G., Myles J. et al. Interpreting the significance of changes in health-related quality-of-life scores // J. Clin. Oncol. – 1998. – Vol. 16, N 1. – Р. 139-44.
9. Fayers P.M. Interpreting quality of life data: population-based reference data for the EORTC QLQ-C30 // Eur. J. Cancer. – 2001. – Vol. 37, N 7. – Р. 1331-1334.
10. Nordin K., Steel J., Hoffman K. et al. Alternative methods of interpreting quality of life data in advanced gastrointestinal cancer patients // Вr. J. Cancer. – 2001. – Vol. 85, N 11. – Р. 1265-1272.
11. Cocks K., King M.T., Velikova G. et al. Quality, interpretation and presentation of European Organisation for Research and Treatment of Cancer quality of life questionnaire core 30 data in randomised controlled trials // Eur. J. Cancer. – 2008. – Vol. 44, N 9. – Р. 1793-1798.
12. Petersen M., Groenvold M., Aaronson N. et al. Item response theory was used to shorten EORTC QLQ-C30 scales for use in palliative care // J. Clin. Epidemiol. – 2006. – Vol. 59, N 1. – Р. 36-44.
13. Bjorner J., Petersen M., Groenvold M. et al. Use of item response theory to develop a shortened version of the EORTC QLQ-C30 emotional functioning scale // Qual. Life. Res. – 2004. – Vol. 13, N 12. – Р. 1683-1697.
14. Apolone G., Filiberti A., Cifani S. et al. Evaluation of the EORTC QLQ-C30 questionnaire: a comparison with SF-36 Health Survey in a cohort of Italian long-survival cancer patients // Ann. Oncol. – 1998. – Vol. 9, N 5. – Р. 549-557.
15. Kuenstner S., Langelotz C., Budach V. The comparability of quality of life scores: a multitrait multimethod analysis of the EORTC QLQ-C30, SF-36 and FLIC questionnaires // Eur. J. Cancer. – 2002. – Vol. 38, N 3. – Р. 339-348.
16. Yin Bun Cheungab, Cynthia Gohc, Julian Thumbood et al. Quality of life scores differed according to mode of administration in a review of three major oncology questionnaires // J. Clin. Epidemiol. – 2006. – Vol. 59, N 2. – Р. 185-191.
17. Holzner B., Bode R., Hahn E. et al. Equating EORTC QLQ-C30 and FACT-G scores and its use in oncological research // Eur. J. Cancer. – 2006. – Vol. 42, N 12. – Р. 3169-3177.
18. Holzner B., Kemmler G., Sperner-Unterweger B. Quality of life measurement in oncology - a matter of the assessment instrument? // Eur. J. Cancer. – 2001. – Vol. 37, N 12. – Р. 2349-2356.
19. Guzelant A., Goksel T., Ozkok S., et al. The European Organization for Research and Treatment of Cancer QLQ-C30: an examination into the cultural validity and reliability of the Turkish version of the EORTC QLQ-C30 // Eur. J. Cancer Care (Engl). - 2004. – Vol. 13, N 5. – Р. 135-144.
20. Wan C., Meng Q., Yang Z. et al. Validation of the simplified Chinese version of EORTC QLQ-C30 from the measurements of five types of inpatients with cancer // Ann. Oncol. – 2008. – Vol. 19, N 12. – Р. 2053-2060.
21. Perwitasari D., Atthobari J., Dwiprahasto I. et al. Translation and Validation of EORTC QLQ-C30 into Indonesian Version for Cancer Patients in Indonesia// Japanese Journal of Clinical Oncology. – 2011. – Vol. 41, N 4. – Р. 519-529.
22. Hoopman R. , Muller M., Terwee C. et al. Translation and validation of the EORTC QLQ-C30 for use among Turkish and Moroccan ethnic minority cancer patients in the Netherlands // Eur. J. Cancer. – 2006. – Vol. 42, N 8. – Р. 1839-1847.
23. Новик А.А., Ионова Т.И. Руководство по исследованию качества жизни в медицине – 2-е изд. / под ред. акад. РАМН Ю.Л.Шевченко. – М.: ЗАО «ОЛМА Медиа групп», 2007. – 320 с.
24. Новик А.А., Ионова Т.И. Исследование качества жизни в медицине: учеб. пособие / под ред. Ю.Л.Шевченко. – М.:ГЭОТАР-МЕД, 2004. – 304 с.
25. Cronbach L.J. Coefficient alpha and the internal structure of tests // Psychometrica. – 1951. – Vol. 16, N 3. – P. 297-334.
